Janice’s Story: Living with Cystic Fibrosis and 3 Active Children

Living with Cystic Fibrosis and 3 Active Children

by Janice Perkins

Janice and familyI am a 37 year old female with Cystic Fibrosis. I have 2 sons (conceived naturally) and a stepdaughter that we raise full time. I am a patient of Dr. Randhawa and I want to share my success since having him as my doctor.

I have seen hundreds of doctors in my lifetime and not one has ever made such an impact as Dr. Randhawa. I was very ill under the care of another CF doctor and was hospitalized. Luckily, my doctor was on vacation and that’s when I met Dr. Randhawa. The moment I met him, I knew he had to be my doctor. He drew out pictures of lungs, listed what factors were affecting my health, set realistic goals for me, and taught me exercises and breathing techniques to clear my lungs of mucus. These are things no other doctor had ever done.

With Dr. Randhawa’s five board certifications, he is able to treat multiple aspects of Cystic Fibrosis. He has treated my immune system with certain medications that only his knowledge could make possible. He goes out of his way for his patients, making sure they have what they need to be well. He knows that one size does not fit all. Dr. Randhawa sees the potential in his patients and expects them to put forth the effort to maintain their health.

Normally visits with previous doctors consisted of looking at lung function numbers and weight, making a guess on what might work for me and then sending me on my way hoping I would still be alive to see them the next visit. One doctor advised me not to have children because I could not be the mother I wanted to be with Cystic Fibrosis and that I would not be able to see my children grow up. Now dealing with CF and having 3 very busy children is definitely a challenge. But with Dr. Randhawa’s passion, knowledge, honesty, and motivation, I am able to be less ill than most CF patients and focus my attention on raising my family.

I have included some helpful hints that have made a difference for myself and raising a family.

Staying Active! I can’t stress enough what exercise does for your lungs and body. I know exercise is the last thing a person with CF wants to do when they do not feel well. A slow walk or some stretching can make a huge difference. Having a family to take care of forces me to get out of bed and get moving.

Eating Well. Most people with CF are told to consume many more calories per day than a person without CF. I try to eat as healthy as possible, consuming smoothies with spinach, berries, coconut water, & hemp oil. I try to cook healthy meals daily and always have a healthy snack on me.

Positive Thinking. The power of positive thinking can have a dynamic effect on your health. I have always maintained a positive outlook while remaining realistic. I do not think about “what if”. I am focused on my future with my family, CF is irrelevant to my thinking. I do not let CF define me. I keep a notebook of my future goals and refer to it often.

Probiotics. These make a huge difference for me. Since we are frequently on antibiotics, it makes a difference to take a probiotic.

Today the life expectancy of a person with CF is 41 years of age (quoted from the Cystic Fibrosis Foundation website). I know that I will surpass that age and that I have many, many more years ahead of me under Dr. Randhawa’s care. Please trust there are people that understand Cystic Fibrosis and will risk anything to make a difference. TPIRC will do great things for the Cystic Fibrosis community and Dr. Randhawa is the hope that we have been waiting for.

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